Do you want to remain invisible for the rest of your life?
Do you want to NOT be there when they count out the dues?
Do you want that the decades-old status quo of no treatment, failed treatment, or delayed treatment continues on forever in American society?
By living in hiding we maintain the status quo of decades of inequality in healthcare; inequality in housing; and inequality in having the quality of life that other Americans take for granted.
To remain silent is to fail to be counted. To remain in hiding is to fail to be seen and acknowledged.
It’s 2017: there can be no shame, no guilt–about having an illness; a diagnosis; about having been attacked if you were a victim; about being the object of someone’s hate; about experiencing trauma.
We must demand an equal stake in the rules–that is the laws–the U.S. government imposes on us. We cannot continue to sit idly by while other people–and elected officials–decide our fate.
Ralph Ellison in his book The Invisible Man wrote: “I am an invisible man because no one sees me.”
The saddest thing is to become invisible to yourself–to keep making yourself smaller and smaller so that other people can accept you.
I say: we must tell our stories, or we won’t get funding for the housing, treatment, and research studies we need.
I find it interesting that a person who ISN’T “living with” a diagnosis of SZ could claim in a review of my memoir that no one can recover.
I’ve talked the talk as a mental health activist for the last 15 years. Now I’m walking the walk having created a business to help people recover.
I want to ask that book reviewer: what is your priority in life? If you think no one with SZ can recover why aren’t you doing anything to try to help us recover?
For too long, outsiders have been looking into the lives of people diagnosed and living with SZ and making judgments about our worth, our abilities, and our strengths.
They seem to be okay with near-endlessly deriding us for the choices we make (which might include taking medication for a lot of us).
They seem to be okay with not doing anything to help us recover.
They seem to be okay with near-endlessly parroting that we can’t recover.
They seem to be okay with standing in judgment of the lifestyle choices of those of us who do recover–as if we don’t have the right to choose the best option for our individual needs.
We need cheerleaders–not critics. We need people cheering us on. We need to be given compassion. We need to be listened to and understood.
Capisce?—as the Italians would say. Understand?
My goal for this spring–it’s an actual goal–is to use my persona to challenge what people think of a person diagnosed with SZ.
I’m tired of being singled out as some kind of exception. To what? I want to ask: To what am I the exception when I’m only being myself?
I’m Chris Bruni. I was diagnosed with SZ when I was 22. This August I’ll have been in remission–out of the hospital and with zero symptoms–for 25 years.
In October I’ll have been in recovery 30 years.
This is my story. What’s yours?